1st DRAFT
نویسندگان
چکیده
Few suitable instruments exist for use with people, especially children, with both epilepsy and learning disabilities. One such measure is the Epilepsy and Learning Disabilities Quality of Life scale (ELDQOL), which has recently undergone revision following feedback from relevant users. This paper reports on the final psychometric testing phase of ELDQOL. ELDQOL consists of 70 items covering seizure severity, seizure-related injuries, AED side-effects, behaviour, mood, physical, cognitive and social functioning, parental concern, communication, overall QOL and overall health. Revalidation involved a qualitative phase to ascertain users’ opinions on the wording, coverage and layout of the questionnaire; and a quantitative phase to examine internal consistency and test-retest reliability, and validity. The final version of ELDQOL has very good evidence of reliability and validity, making it a promising instrument for assessing QOL in children/young adults with epilepsy and learning disability. Word Count: 138
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